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child death, but positive news? still a very heavy topic but it's a good development 

THEY FIGURED OUT SIDS

My husband is a pharmacist and pointed out that this also impacts the ability of doctors to safely anesthetize some patients, because sometimes they need to use a paralytic and if they can test for this enzyme they can have a much better chance of predicting how well their patient will recover

but also

HOLY SHIT??

I hope this brings some small measure of peace to parents blaming themself for the loss of an infant to SIDS. Because it wasn't that the mattress was wrong or there was a blanket nearby or whatever whatever because blankets don't fuck up obscure baby brain enzymes

it's a fucking enzyme thing

And I read this research was at least partially crowdfunded too, so we can maybe add another tally to the Seizing The Means Of Research Production victory column.

biospace.com/article/researche

child death, but positive news? still a very heavy topic but it's a good development 

@cobalt I remember the terror of having an infant and a corner of my brain constantly wondering if he would live through the night. As with so much else, it turns out the key was luck and not effort. I hope in addition to saving babies' lives in the future, this research will allow bereaved parents to forgive themselves like you said :blobcatheart:

child death, but positive news? still a very heavy topic but it's a good development 

@cobalt that, uhm... oh... actually, that specific anaesthesia issue will directly impact the sudden question of whether I'll be able to have transition-related surgeries

so uhm, damn, nice. not the main point, but nice to know!

child death, but positive news? still a very heavy topic but it's a good development 

@nisima oh shit I actually considered not including that but now I'm really glad I did

child death, but positive news? still a very heavy topic but it's a good development 

@cobalt I needed good news, thanks for posting this

child death, but positive news? still a very heavy topic but it's a good development 

@cobalt I was so worried about SIDS when Z was an infant.

child death, but positive news? still a very heavy topic but it's a good development 

@MrsMouse because it's terrifying!!! I am completely certain I can't imagine the scale on which it is terrifying

and then coming packaged with lifelong guilt? ffs

nightmare

cw child death, medical anxiety, recreational drugs 

@cobalt i heard about this and i still feel VERY VERY MIXED because… i have this enzyme deficiency. it’s hereditary. i have to carry a medic alert card, and still nobody (including doctors) ever really knows what it means when i tell them. it’s been highlighted on every form i’ve ever filled and yet it never sticks on my medical record. it… hurts to read this. is it dangerous for me to have a kid? i’m sat with this big pile of fear, knowing nobody knows enough to help me feel better. my mother has it, her mother has it, her mother had it - and i’m SCARED! but maybe this research will eventually bring some reassurance.

as an aside, more people should talk about how this enzyme is also responsible for breaking down cocaine, and turning heroin into morphine. it’s thought to be a big factor in why some people try cocaine once, and just die - their bodies can’t break it down. doctors never told me that - i was just an annoying teen googling all the things i thought made me special - and i’m glad i found out before i went to art school and started working in live music and stand up comedy. i have had to leave a LOT of parties/mixers/industry-whatevers purely because it would be a danger to my life to stay.

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Rage.love

Generalist Hometown instance with a strong focus on community standards. No TERF, no SWERF, no Nazi, no Centrist.